Today we launch our new guide about worry free breathing during power failure – Life and Breath.
Why we produced this 7 page guide / factsheet There are occasions where power failure has led to loss of life for people with muscular dystrophy who use respiratory equipment. DMD Pathfinders wanted to highlight the importance of a robust power failure safety plan – providing information so that people can make their own emergency plans. The guide has been written by people who use a range of medical equipment such as ventilators and cough assistance devices. All contributors have lived experience of Duchenne or similar types of muscular dystrophy and share with us their emergency plans. Thank you to all those who contributed to this guide. *The guide is also available in Word and Pages formats.